Hello Everyone,
I haven't posted in a while because I wasn't sure people were using it. However, Dad informed me that members of his family as well as Moms brother do use the blog to stay informed on Moms condition. So, I will continue to post.
We have had a hard time lately. Approximately five weeks ago Mom and Dad went to Mayo and the doctor decided to take Mom off the research trial she had been on. That meant no chemo and no further treatment. He was quite vague as to the reason he made this decision, stating that he felt she was not improving. Once he made this decision he pretty much left them to their own devices. Mom has decided she would like to find a treatment facility closer to home so we contacted The City of Hope in Duarte,CA. We consulted with them and a doctor we spoke to there seemed puzzled as to why Mayo made the decision to remove Mom from the trial. From the reports he read he would call it a "stable" disease. This is soooooo frustrating!!!!
City of Hope compiled all of Moms records and has some treatment options for Mom. They also work with a doctor located in Riverside, so there is a potential that treatment could be very close to home. Mom, Dad and I will go to City of Hope tomorrow and make a final decision.
Mom hates to start chemo again because she feels better off it, but she knows she must. Mom now needs the paracentesis almost once a week. Each time they remove approx. 4 liters. At this time the swollen abdomen remains her chief complaint.
Throughout all of this Mom remains a lady. Always dressed and looking beautiful, never complaining to any of us. There is no one like her!! She is the best!!!!
I will post again when we know what direction we will be taking next. Please pray for Mom. Pray that we can have a lot more time, and that she is without pain or discomfort.
Bye for now, Michelle
I haven't posted in a while because I wasn't sure people were using it. However, Dad informed me that members of his family as well as Moms brother do use the blog to stay informed on Moms condition. So, I will continue to post.
We have had a hard time lately. Approximately five weeks ago Mom and Dad went to Mayo and the doctor decided to take Mom off the research trial she had been on. That meant no chemo and no further treatment. He was quite vague as to the reason he made this decision, stating that he felt she was not improving. Once he made this decision he pretty much left them to their own devices. Mom has decided she would like to find a treatment facility closer to home so we contacted The City of Hope in Duarte,CA. We consulted with them and a doctor we spoke to there seemed puzzled as to why Mayo made the decision to remove Mom from the trial. From the reports he read he would call it a "stable" disease. This is soooooo frustrating!!!!
City of Hope compiled all of Moms records and has some treatment options for Mom. They also work with a doctor located in Riverside, so there is a potential that treatment could be very close to home. Mom, Dad and I will go to City of Hope tomorrow and make a final decision.
Mom hates to start chemo again because she feels better off it, but she knows she must. Mom now needs the paracentesis almost once a week. Each time they remove approx. 4 liters. At this time the swollen abdomen remains her chief complaint.
Throughout all of this Mom remains a lady. Always dressed and looking beautiful, never complaining to any of us. There is no one like her!! She is the best!!!!
I will post again when we know what direction we will be taking next. Please pray for Mom. Pray that we can have a lot more time, and that she is without pain or discomfort.
Bye for now, Michelle
posted by The Roberts Family at
11:17 AM
2 Comments:
Dear Roberts Family-
Thanks for the update. I hope your mother gets back to treatment and shows improvement soon and that the fluid retention also subsides.
Thinking of you and praying for us all, Caroline Stoufer - Ouray, Colo.
By
Caroline Stoufer, at 5:26 PM
Hi Michelle,
Thanks for the post. I read this blog everyday and pray for everyone who is dealing with this disease. My mom June passed away in July 2004, she was diagnosed with cc during the resection surgery. Mom had half her liver removed and never recoevered from the surgery. What they didn't tell us at Ohio State was that this surgery is much worse than having transplant surgery. I guess when someone thinks cancer, they immediately think surgery to get rid of it, not this cancer, however. I live in Chicagoland, and Walter Payton (Bears) had this disease also, they have made some progress since in the last ten years. Please know that we are pulling for your mom. Take care.
Sarah Pearson-Garcia
By
Anonymous, at 10:13 PM
Post a Comment
<< Home